Steve's sleep study didn't include a lot of sleep. We were thankful for the extra day off yesterday, which allowed him more time to catch up on rest.
He was at the hospital before 10 p.m. Saturday but wasn't checked in until midnight. Then the tech had to hook him up to all kinds of gadgets (with goo that doesn't wash out well). He woke up around 5 a.m., pressed the nurse's call button and was let out after 6. We hope they gathered enough data that he doesn't need to return. We'll know more after next week's pulmonology appointment.
In other news, Steve's thrush in the back of his throat is back. He says this case is more severe than normal. He's resumed the four-times-a-day rinse that tastes awful but eventually clears the infection.
His spirits are still strong. His voice is not. It's noticeably weaker today. And he's more wobbly now than he was a week ago. He talked yesterday about dropping his steroid dose to 1.5 mg, but now he's not sure. The love-hate relationship continues with Decadron. It helps him walk, use his left arm and hand and talk. It also encourages a slimy infection in his throat, causes cataracts, thins his skin and weakens his muscles.
We constantly rely on perspective. His current symptoms aren't any fun, but it's September, almost nine months after his cancer diagnosis, and he's working full time, enjoying life with family and friends, going on outings. I am indescribably proud of how he's handled every challenge and feel so blessed that you all still check on him, pray for us and take good care of us.
He was at the hospital before 10 p.m. Saturday but wasn't checked in until midnight. Then the tech had to hook him up to all kinds of gadgets (with goo that doesn't wash out well). He woke up around 5 a.m., pressed the nurse's call button and was let out after 6. We hope they gathered enough data that he doesn't need to return. We'll know more after next week's pulmonology appointment.
In other news, Steve's thrush in the back of his throat is back. He says this case is more severe than normal. He's resumed the four-times-a-day rinse that tastes awful but eventually clears the infection.
His spirits are still strong. His voice is not. It's noticeably weaker today. And he's more wobbly now than he was a week ago. He talked yesterday about dropping his steroid dose to 1.5 mg, but now he's not sure. The love-hate relationship continues with Decadron. It helps him walk, use his left arm and hand and talk. It also encourages a slimy infection in his throat, causes cataracts, thins his skin and weakens his muscles.
We constantly rely on perspective. His current symptoms aren't any fun, but it's September, almost nine months after his cancer diagnosis, and he's working full time, enjoying life with family and friends, going on outings. I am indescribably proud of how he's handled every challenge and feel so blessed that you all still check on him, pray for us and take good care of us.
Katie, Steve and Cooper on Saturday at the Nasher Sculpture Center, one of Steve's happy places
2 comments:
Keeping you all in my prayers.
Hi Steve, It is Marilie "Kline" Coulson again. I just wanted to say how happy I am for you that you are doing well. I still keep up with your wife's fantasic blog and am constantly encouraged by your family's unshakable faith and determination. God Bless you all and continue to take care of yourself.
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